Friday, 13 January 2012

  • Thinking Person’s Guide to Autism - Review

    I sat and read this book over a couple of days and I loved it. The introduction begins, “This is the book we wish we’d been given when autism first became part of our lives…” the editors have put a lot of time and personal effort into sharing the lessons they have had to learn the hard way. Having said that, I’m not suggesting this book will make the experience of bringing up a child with autism easy, but I believe it will make it easier. What do I know about bringing up an autistic child? I have autism, so I actually understand very little of how it feels for a neurotypical person to have an autistic child. There is obviously a difference between looking out of autistic eyes and looking into the eyes of someone with autism, I think things look better from my side of the lens.

    This book is aimed primarily at the parents – most often the mothers – of children with autism and is designed to help them throughout the experience of diagnosis and child rearing, but it also contains a lot of good stuff for people with autism and anyone connected with autism. I was fascinated reading the first hand accounts of parents with autistic children, I tend not to be very aware of other people’s feelings so this book is quite an eye opener, I suspect it will help parents of autistic children to know that they are not alone in their feelings and experiences. What will help them more is the practical advice, the lessons learned by others who generously share them here, yes you will have to undergo similar experiences, IEPs etc., but you don’t have to stumble around blindly because others who have gone before you are giving you a guidebook here.

    The book is arranged in chapters each containing several fairly short essays, and is well indexed at the rear which makes it easy to locate information. The format makes the information easy to digest because it is in manageable chunks. It also means that any spare five minutes can provide valuable learning, as far as I can gather information that can be garnered in increments of a few minutes at odd times may well suit many autism parents. I think it is also useful that this is a book that can be read in any order, selecting whatever is wanted at the time, I am going to leave it in my sitting room so it can be dipped into in spare moments.

    This is not a book “about” autism by “experts” this is a book by people who are actively involved in autism either as parents, family members, or people on the Spectrum. There are a few articles by autism professionals, but they are professionals for whom autism represents more than just a job, and the articles fit in well with the overall ethos of the book – useful information in manageable chunks. The people contributing are sharing of themselves, they share the mistakes they made, and the valuable lessons they have learned. The autistic contributors share something of the experience of being autistic, this in itself should provide a degree of hope for many parents, and help them to understand that the world we live in may not be as terrible as they suppose – it’s not all great, but it’s not all bad either and sometimes it’s pretty good! There is much that is positive in the experiences of the parents in the book and there is a lot of joy besides the heartaches and anxieties, as well as tears there is laughter.

    The book contains a list of resources, remember these resources are things that the editors – parents of children with autism – have found of value. You are not being sold anything just provided with tools that have worked for some, are working for some and many of which will cost you nothing. The resources and therapies referenced in the articles may cost – time and money – but this book will help you make the decisions you must and guide you towards the practical and financial support you need, you don’t have to walk this path alone.

    This is a book of HOPE. The underlying message is that however tough things may be, however difficult they may get, don’t give up. Things can – and generally, but not always – will get better and there are resources available and people willing to help you give your child the best possible life. I believe this book may be the turning point in the lives of many parents of autistic children, but what do I know? I am an autistic adult and I contributed.

Monday, 09 January 2012

  • Domino Diagnosis and the Thinking Person’s Guide to Autism

    It would appear that, as well as being on the Spectrum, I am also an autism parent. I never suspected my daughter might have an ASD, not even after I received my own diagnosis. It was my wife you suggested it as a possibility and it would explain much about her journey through life. My adult daughter did an online autism test which suggests she is on the Spectrum – http://glennrowe.net/BaronCohen/AutismSpectrumQuotient/AutismSpectrumQuotient.aspx – but as yet she hasn’t decided whether to go for assessment. It appears to be a common phenomenon that the diagnosis of one family member reveals others on the spectrum.

    My wife has been adding to our library of autism books – you’d think she’d know better than to feed my obsessions! – and among her selection is Aspergirls by Rudy Simone which seems to suggest that my daughter is an Aspie. I feel about my daughter much as I felt about my own diagnosis, that if only I’d known sooner we could have done something to avoid some of her problems before they arose. For a while I also underwent “autism parent guilt” you know the one, “is it something I did, is there something I could have done? and – in my case – am I to blame for passing on my genes?” I am delighted that our book order also included the quite excellent Thinking Person’s Guide to Autism which I am reading, and it makes it very clear that I am not the only parent to experience guilt. There is a lot of book still to read, but so far it is helping me make sense of my daughter, and myself as well as opening my eyes to aspects of autism I had not already considered. I just love the willingness of so many people to share from their experiences, I don’t know how much it will help me with my daughter, but it’s certainly helping me with me!

Monday, 02 January 2012

  • Bereavement – Out of Sight, Out of Mind

    My wife has been looking back at the bereavements in her life and I have been observing her; it occurs to me that my attitude to bereavement is not only different from hers, but perhaps from humans in general.

    Several years ago on AHR (Alt Healing Reiki newsgroup) in response to someone reporting a death, I remarked, “People die”, for me a straight forward statement of inevitability, I could not understand then, and do not understand now why people make such a big deal over death. Unfortunately my response led to me being abused by a number of people who, while accusing me of insensitivity, felt it perfectly acceptable to flame me on the newsgroup.

    I cried once when my mother was dying, but not because she was dying; I cried because I was unable to impact the process of death whether by prayer, healing or Reiki and I disliked the sensation of powerlessness. I think the only person who has died that I really miss is my Father-in-law, I am not in any way sad, but I enjoyed his company. When I was much younger I wept when my friend Sadie died, she was several years older than me and had always been kind to me when many weren’t, and I was sad when my whippet cross bitch Curly died.

    My one objection to death is that it does tend to cause an interruption to one’s life, worse an interruption during which one is surrounded by people being emotional, that is much more upsetting to me than someone’s death. I definitely dislike it when a death compels major change in my routines, as my Father-in-law’s did. I like a degree of predictable routine and order and bereavement is disruptive, but I do quite enjoy meeting family members whom otherwise I would not see and death provides a reasonably sedate context which discourages excess noise and ebullience. I certainly prefer funerals to weddings, you get to see people without having to put up with loud music and dancing and the food is often just as good.

    Generally for me death is a matter of “out of sight, out of mind”. I tend not to think of people when I am not regularly encountering them, whether living or dead. Frequently I have thought I should phone or write to someone only for months, even years to pass, before any action is taken. My problem is that I have little sense of the passage of time, my wife says I have the biggest “Now” of anyone she knows, this tends to mean that I either act immediately or I don’t act, I lack a sense of urgency. Because only the immediate really impacts me the past, the future and the geographically distant make little impression upon me and anyone not immediately present tends to escape my consideration.

    I think another reason death has little impact upon me is that it is illogical to be upset by death. Everyone – even Markandeya – must eventually die; if there is a life after death then death is merely a step on a journey, if there is oblivion after death then there is little point in worrying as it will make no difference. Someone who is absent through death is – to me – no different from one who is disconnected from me by geography, they are absent and that’s that. I may or may not meet some again, but it is of no great concern to me. Life happens and there is little point in getting emotional about it, people come and go, they always will, it is enough to get on with what we must and not waste time in fruitless brooding over things that can never be, or longing for things that can never be again.

Saturday, 17 December 2011

  • A Buster Keaton Week.

    I just banged my hand again. It’s been one of those weeks, if there was something to walk into, to fall over or upon which to bang any part of my anatomy then that is what has happened. My finger ends are sore from missing that for which I was reaching and instead hitting shelves, unfortunately when I do pick things up I drop them, as often as not. I seem to knock things over as readily as grasp them. Typing is a chore as my fingers are stubbornly refusing to type what I want, forcing me to backspace repeatedly. This week the vertical has been escaping me at inconvenient moments like negotiating doorways, my shoulders have suffered! I have been catching sleeves and pockets on door handles and my poor toes have taken more punishment that they deserve. My coordination is totally shot at the moment.

    Everybody’s talking at me, I can’t hear a word they’re saying. If they’d only speak one at a time, if there was no background noise, perhaps things might be easier. I hate sitting in pubs and watching people’s mouths moving without being able to separate their words from the general din. Why do public venues feel obliged to play music and surround customers with television screens?

    Excuse my rant, but it’s just been one of those weeks. And now it’s snowing, lots more potential for bumps and bruises, oh goody!

Friday, 09 December 2011

Springingtiger

  • Visit Springingtiger's Autisable Site
    • Name: Springingtiger
    • Gender: Male
    • Member Since: 11/9/2009

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